Reesie

I just wanted to write about our weekend with Reese.  Its been scary, glad its over and hoping to never have to deal with that again.

Friday after noon we were sitting together and all of the sudden i saw this blank look on her face and blank look in her eyes.  She started chewing on the left side of her cheek and looking like she was about to throw up.  This went on for about a minute then i picked her up and layed her on my lap.  She then started rubbing her eyes and i just kept asking her what was wrong.  I never got an answer from her so i just kept asking.  When she was rubbing her eyes she was trying to answer me but all i heard was mumbling.  Finally she looked at me and i could see that she was back and when i asked her what was wrong she said "nothing."  I asked her if she knew or remembered what just happen and she said no.  All she said was how tired she was.  She got up from my lap and went over to the couch and the second her head hit the pillow she was out.  That was the second i thought that maybe she just had a seizure.  I wasn't sure because all i knew about seizures was that people go into convulsions and then immediately get tired and fall asleep.  So i went to the trusty computer and looked it up.  It talked about all different kinds of seizures and then i started reading about seizures like the one that Reese just had.  All i could think was that there was no way my little healthy Reesie just had a seizure.  There is nothing mentally or physically wrong with her.  I started calling her dr and telling them what she just went through.  Normally they would ask for my number and return my call.  Not this time!  They told me to go straight to the emergency room.  Not something i wanted to hear!  I called Josh and thankfully he left work early that day and was almost home.  He just met me there. ( For those of you that dont know, we have a new hospital that opened up about 3 minutes from our house.  ITS AWESOME!  :))  While we were there the dr said it sounded like a seizure but couldn't be sure until they saw it happen.  The did a CAT scan and some blood work and everything was normal.  The dr then said that they were sending us home and if it happens again to go straight to Cook Childrens Hospital.  So while they were discharging us she did it again.  This one was not as big as the one before.  It lasted may 30 seconds.  Josh ran out to get a nurse and she saw the tail end of it.  Dr came in and said well we are going to transfer her over to Cooks.  So in the ambulance we go.  Reese thought that was the coolest  think in the world!  She kept saying "this is fun!!"

Now we are at another hospital, being watched by more nurses, waiting on another dr.  She has another seizure.  All the nurses saw it this time. Let me just say that Cooks was PACKED!!  There were 350 waiting in the waiting room.  Once the nurses saw her seize they moved her to the top of the waiting list.  Another dr came down and ordered and EKG. When the EKG was over and we started taking the tape off she started crying.  It was close to midnight and neither one of us had much to eat.  She had another seizure. Those results came back showing nothing also.  The dr told us that they wanted to keep her over night to monitor her.  So then we had to wait again!  Finally 2:30 in the morning rolls around and we finally get to go up to our room.  Of course when we get there they have to do her blood pressure, heart rate, oxygen level and weigh her, answer a bunch of similar questions and tell the story all over again.  Finally we are able to go to sleep.  It was probably 3:30.  They hooked her up to a monitor so i felt good with sleeping instead of watching her like a hawk all night long.

Morning comes along and we get woken up early because they have to take her blood pressure and temp.  After that she had another seizure.  That was not how i wanted the day to start.
We had to wait around because the neurology dr wanted her to have and EEG.  It was scheduled for 11 and ended up happening shortly after 2:00.  She was such a trooper during the whole thing.  It took a half hour for the test to be complete.  She was so annoyed by the end of it.

                                           
                                                  She is actually saying "cheese" in this picture!  :)

After this test we again had to wait to see the dr.  He came in around 5 and told us that there were a couple of spikes on the monitor but nothing to make him think that is the problem.  So once again the test showed nothing.  He said we could go home and gave her some meds to take.

There is a build a bear inside the children's hospital.  What a good idea!!!  My sister was nice enough to call them and give them her CC number so Reese could pick out anything she wanted!  She loved it!!

                                       This is how the kids get around in the hospital.  She loved it!

                             

                         With her bear she named....Bear!!  LOL  THANKS AGAIN AUNT TERESA!

Well we ended up getting home around 8 Saturday evening.  Needless to say i was WIPED OUT!!  Physically and emotionally. Josh hugged me and finally i could just let it all out and i couldn't stop.  She is on meds now and hasn't had a seizure since Saturday morning.  I cant stop starring at her.  She just looks at me and says "can i help you" or "stop starring at me!"
She is scheduled for and MRI next Friday.  I will update then.